Empowerment Hub
Catheter Training
Our catheter training empowers individuals with Spina Bifida to master Clean Intermittent Self Cathetrization (CISC). This skill promotes independence and helps maintain health. We guide you every step of the way through our resources, information, guidance and support.
With our hands-on training, youʼll learn effective techniques and best practices. Our experienced instructors provide personalized support, ensuring you feel confident and comfortable. Say goodbye to worries and hello to freedom!
We guide you on minimizing Urinary Tract Infections (UTIs) and managing them when they occur, along with catheterization. UTIs are like occupational hazards; you can reduce their frequency but can’t completely avoid them.
We educate individuals with Spina Bifida on both types of urinary incontinence and how to manage them. Since most people with Spina Bifida experience Stress Urinary Incontinence (SUI), we provide guidance on all available medical and surgical options for both males and females.
We offer easy-to-follow resources and video demonstrations that you can access anytime. At Sasha, we strongly oppose surgical procedures for catheterization and Stress Urinary Incontinence (SUI). Instead, we prioritize a non-surgical, conservative approach, first.
Bowel Management
Our Bowel Management program equips individuals with Spina Bifida with essential skills for effective Bowel Irrigation or TAI and Digital Evacuation. Gain control and improve your comfort while enhancing your daily life with our expert guidance!
At Sasha, we recognize that most individuals with Spina Bifida experience severe constipation. We view this as a blessing in disguise because, in many cases, the lack of anal tone makes it difficult to control the faecal matter. Constipated stool helps reduce accidents, leading to a more confident personal and love life. The key is to maintain a level of constipation that prevents accidents without hindering stool evacuation. At Sasha, we guide you on how to achieve and maintain this balance.
At Sasha, we firmly oppose the Malone Antegrade Continence Enema (MACE) procedure for bowel management, as the primary option for bowel management. Instead, we prioritize a non-surgical, conservative approach, first. Some healthcare providers often promote both the MACE (for bowel) and Cystoplasty with Mitrofanoff (for bladder) procedures as a package for individuals with SB, without first guiding or allowing them to try conservative methods.
These two surgeries are frequently suggested for children with SB, and many parents view them as transformative and choose to proceed. However, these procedures come with significant drawbacks, including an impact on an individual’s romantic and intimate life. It’s important to let your children grow up and make these decisions for themselves. We are here to help.
Surgery Guidance
Our Surgery Guidance helps individuals with Spina Bifida understand important surgical options. We provide clear information on what to expect, empowering you to make informed decisions about your health and future!
With our expert support, youʼll learn about necessary surgeries, recovery processes, and potential outcomes. Our compassionate team is dedicated to helping you navigate choices that best suit your needs and lifestyle. You’re not alone!
We offer easy-to-understand resources, including guides and FAQs, to clarify any questions you might have. Our goal is to ensure you feel confident and prepared for every step of your surgical journey. Knowledge is power!
Join our supportive network where you can connect with others who’ve faced similar decisions. Share experiences, ask questions, and receive encouragement. Together, we can navigate the path to better health and well-being!
Ready to take control of your journey? Our Surgery Guidance program is here to help you make informed choices with confidence. Let’s explore your options together and pave the way for a healthier, brighter future! Make an informed call!
Support Groups
Support Groups for SB Individuals and Families
Our support groups provide a safe space for individuals and parents affected by Spina Bifida to connect, share experiences, and find strength in the community. Our disability support group offers resources, information, guidance, and support to help you navigate your journey.
We understand the unique challenges you face and aim to provide a network of support to help you navigate through them. Our groups foster a sense of belonging and empowerment.
Through these gatherings, you can gain valuable insights, resources, and encouragement, empowering you to lead a fulfilling life and advocate for Spina Bifida awareness. Join us and be part of a resilient community.
Our supportive environment encourages open discussions, fostering personal growth and resilience. Together, we strive to break barriers and inspire others with our strength and determination.
Join our support groups today and find the camaraderie and understanding you deserve. Take the first step towards a brighter, more empowered future.
Family Resources
Comprehensive Resources and Information
Our family resources provide a wealth of information, guidance, and practical support to help families navigate the complexities of Spina Bifida with onfidence and ease.
We offer educational materials, guidance, and access to specialists, empowering families to make informed decisions and improve their quality of life.
Our goal is to equip families with the tools and knowledge needed to create a nurturing and supportive environment for their loved ones affected by Spina Bifida.
Explore our family resources and get a network of support, guidance, and empowerment. Take the first step towards a brighter future for your family.
Awareness Campaign
Community Outreach
Our awareness campaigns aim to educate, advocate, and raise public understanding of Spina Bifida, promoting acceptance and inclusivity for those affected by the condition.
We organize events, workshops, and initiatives to spread knowledge, foster empathy, and empower individuals and families impacted by Spina Bifida. This objective may involve offering education, rehabilitation, and livelihood opportunities. Join us in making a difference.
Through our campaigns, we strive to create a more supportive and inclusive society, where individuals with Spina Bifida are embraced for their strength and resilience. Sasha will work to remove obstacles that persons with disabilities like Spina Bifida encounter daily.
Join our awareness campaigns and become a catalyst for change. Together, we can make a powerful impact and shape a more understanding and compassionate world for those affected by Spina Bifida. Let’s work to encourage voluntary action to ensure the effective implementation of the Rights of Persons with Disabilities Act, 2016.
Championing Strength and Awareness for the Spina Bifida Community.
